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Matthew Chapman
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Individual Blog Entry
I'm getting really fed up of this now. I'm generally a fighter through rough times and up to now I've tried to view this whole illness thing as a bit of excitement and interesting first person view into the extended testing and diagnosis route that the NHS employ. But now, I'm done with it all.
On Sunday evening, I was invited up the hill from my flat to the pub, a 5 minute walk. When I arrived, I was very faint headed, dizzy and nauseous. From a 5 minute walk!!
If I eat anything more than a snack I get into that awful feeling of sickness and being totally spaced out.
And it's affecting my sleep even more now too. I'm not being refreshed by sleep and getting off to bed is difficult. I was in bed not long after midnight last night and didn't finally get to sleep until some time after 4am.
So, I've had the consultation with this private doctor. He was really friendly and we talked through everything right back from the start in early December. He asked lots of questions, probing various areas of my symptoms and then checked up on any swelling in my tummy. In the end he agreed with the GP that I'm not psycologically putting this on in any attempt to feel like this (if only it were that easy to solve) and has sent me for 9 more blood tests. If they come back negative, I may be sent for an endoscope thing down my throat to take a look at my stomach. After those avenues are done, the consultant conceeded that it's looking very much like CFS/ME.
Just got to find myself a bus to get over to Lister Hospital for these tests, now.
*sigh*
On Sunday evening, I was invited up the hill from my flat to the pub, a 5 minute walk. When I arrived, I was very faint headed, dizzy and nauseous. From a 5 minute walk!!
If I eat anything more than a snack I get into that awful feeling of sickness and being totally spaced out.
And it's affecting my sleep even more now too. I'm not being refreshed by sleep and getting off to bed is difficult. I was in bed not long after midnight last night and didn't finally get to sleep until some time after 4am.
So, I've had the consultation with this private doctor. He was really friendly and we talked through everything right back from the start in early December. He asked lots of questions, probing various areas of my symptoms and then checked up on any swelling in my tummy. In the end he agreed with the GP that I'm not psycologically putting this on in any attempt to feel like this (if only it were that easy to solve) and has sent me for 9 more blood tests. If they come back negative, I may be sent for an endoscope thing down my throat to take a look at my stomach. After those avenues are done, the consultant conceeded that it's looking very much like CFS/ME.
Just got to find myself a bus to get over to Lister Hospital for these tests, now.
*sigh*
:( poo poo and more poo.
when do you need to go to lister? i can lift you if im not working -- or have you already had them?
someone please tell me what w00t means. nonody here knows..... im so confused.
by Matt at 19:07 on 04th May 2006
Thank you for the offer. That would be very nice. Public transport there doesn't appear to be too good.
And w00t. Erm, it's just a term of "hooray" or excitement. It's generally "I'm glad!". It started in geek circles I'm sure. :D
by Clare at 07:47 on 05th May 2006
Ugh, it's really rough that this has been dragging on for so long. :( Fingers crossed for the private dude being able to turn some news up for you!
by ally at 13:24 on 05th May 2006
when you need lifting matteus?
I am working with bugs again now so tell me when and ill see what i can do
xxx
by Matt at 17:25 on 05th May 2006
Hello. I stopped being lazy and I got a bus. I've had my blood taken now! But you're so kind! *hug* :D
by Neil-san (a.k.a. a-v0id) at 22:27 on 11th May 2006
My prognosis is MCD*, last person I met with that died in 6 months of finding out!!!
As for my NGS**, still writhing in pain and tried everything from hospital trips to acupuncture, countless pills and nasal sprays and even antidepressants. Hopefully i'll be sent to a optical-neurologist next.
MCD* Matt Chapman Disorder - fatal lazy guts symptons with little life expectancy :P
NGS** Neil Gonzalez Syndrome - chronic migranes, short term memory loss, visual disturbances and irritability.
by Matt at 23:46 on 23rd May 2006
I've not tried Acupuncture, but it's been recommended. To be honest I'm not really inclined to try anything but sit at home and do as little as possilbe. Any exersion makes me feel quite crap. At least I don't have the migranes and visual problems, the memory loss though... :/